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	<title>Hanami Prints Blog: Learning to Live Without Our Children &#187; maternity care</title>
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	<link>http://hanamiprints.com/wordpress</link>
	<description>miscarriage, stillbirth, neonatal death, or the loss of a child at any age</description>
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		<title>A Small Victory: Helping Newly Bereaved Parents Create Memories with their Children</title>
		<link>http://hanamiprints.com/wordpress/a-small-victory-helping-newly-bereaved-parents-create-memories-with-their-children</link>
		<comments>http://hanamiprints.com/wordpress/a-small-victory-helping-newly-bereaved-parents-create-memories-with-their-children#comments</comments>
		<pubDate>Wed, 09 Dec 2009 17:56:31 +0000</pubDate>
		<dc:creator>hanamipapa</dc:creator>
				<category><![CDATA[Random Thoughts]]></category>
		<category><![CDATA[Videos]]></category>
		<category><![CDATA[bereaved parents]]></category>
		<category><![CDATA[child loss]]></category>
		<category><![CDATA[infant loss]]></category>
		<category><![CDATA[maternity care]]></category>
		<category><![CDATA[Pregnancy Loss]]></category>
		<category><![CDATA[video]]></category>

		<guid isPermaLink="false">http://hanamiprints.com/wordpress/?p=434</guid>
		<description><![CDATA[A Small Victory is a 501(c)(3) non-profit organization providing hospitals and other birth professionals with CARE Packages which gently guide newly bereaved parents...


Related posts:<ol><li><a href='http://hanamiprints.com/wordpress/faiths-lodge-a-place-where-hope-grows' rel='bookmark' title='Permanent Link: Faith&#8217;s Lodge: A Place Where Hope Grows'>Faith&#8217;s Lodge: A Place Where Hope Grows</a></li>
<li><a href='http://hanamiprints.com/wordpress/grief-support-after-the-death-of-a-child-the-compassionate-friends' rel='bookmark' title='Permanent Link: Grief Support After the Death of a Child: The Compassionate Friends'>Grief Support After the Death of a Child: The Compassionate Friends</a></li>
</ol>]]></description>
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<blockquote><p>A Small Victory is a 501(c)(3) non-profit organization providing hospitals and other birth professionals with CARE (Compassionately Alleviating Regret Everyday) Packages which gently guide newly bereaved parents in creating memories with their children that will last a lifetime. Founded by Liz and Ethan Allen, A Small Victory also pledges to open their hearts and lend an ear to all who are in need of an understanding friend.</p>
<p>A Small Victory relies on generous contributions and devoted support from the community to continue the services they provide. It is their hope and dream, that their organization will be A Small Victory for bereaved parents everywhere by turning misfortune into memories.</p>
</blockquote>
<p>Founded in 2006 <strong>A Small Victory</strong> has helped over 200 families spanning across 42 States, 3 Canadian Territories and the UK. It is wonderful to watch this great organization grow from year to year. The <em>CARE (Compassionately Alleviating Regret Everyday) Packages</em> are a much needed addition to the labor and delivery ward for parents who have experienced a loss.</p>
<ul>
Included in the <a href="http://www.asmallvictory.org/carepackage/" class="broken_link">Care (Compassionately Alleviating Regret Everyday) Packages</a> are:</p>
<li>Certificate of Birth</li>
<li>Camera</li>
<li>Footprint Card</li>
<li>Hair Clipping Card</li>
<li>Journal</li>
<li>and much more&#8230;</li>
</ul>
<p>Please visit A Small Victory&#8217;s <a target="_blank" title="Care Package" href="http://www.asmallvictory.org/carepackage/" id="r91t" class="broken_link">Care Package</a> page to get a complete list of items and a detailed description of each.</p>
<h2>Useful Links:</h2>
<ul>
<li><a title="A Small Victory" href="http://www.asmallvictory.org/" id="ejrm" class="broken_link">A Small Victory</a></li>
<li><a title="A Small Victory" href="http://www.asmallvictory.org/" id="o001" class="broken_link">A Small Victory </a><a title="Blog" href="http://asmallvictoryorg.blogspot.com/" id="y7ax">Blog</a></li>
<li><a title="A Small Victory" href="http://www.asmallvictory.org/" id="lu90" class="broken_link">A Small Victory on </a><a title="Facebook" href="http://www.causes.com/asmallvictory" id="ytk8">Facebook</a></li>
<li><a title="Donate" href="http://www.asmallvictory.org/give/" id="go-l" class="broken_link">Donate to A Small Victory <br />
</a></li>
</ul>
<p>A Small Victory is doing important work. I&#8217;ve lost count of how many families I&#8217;ve heard say, we wish we had something tangible to remember our baby by. Simply when in the whirlwind and shock of grief, you do not think about obtaining a keepsake. Fortunately for us one nurse asked if she could take pictures of our son&#8211;thankfully we have a few snapshots to remember him by.</p>
<p>Have you or anyone you know received A Small Victory&#8217;s Care Package? What do you think about their mission?</p>


<p>Related posts:<ol><li><a href='http://hanamiprints.com/wordpress/faiths-lodge-a-place-where-hope-grows' rel='bookmark' title='Permanent Link: Faith&#8217;s Lodge: A Place Where Hope Grows'>Faith&#8217;s Lodge: A Place Where Hope Grows</a></li>
<li><a href='http://hanamiprints.com/wordpress/grief-support-after-the-death-of-a-child-the-compassionate-friends' rel='bookmark' title='Permanent Link: Grief Support After the Death of a Child: The Compassionate Friends'>Grief Support After the Death of a Child: The Compassionate Friends</a></li>
</ol></p>]]></content:encoded>
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		<title>Number of stillbirths a &#8216;national tragedy&#8217;, says charity &#8211; Times Online</title>
		<link>http://hanamiprints.com/wordpress/number-of-stillbirths-a-national-tragedy-says-charity-times-online</link>
		<comments>http://hanamiprints.com/wordpress/number-of-stillbirths-a-national-tragedy-says-charity-times-online#comments</comments>
		<pubDate>Wed, 18 Nov 2009 18:37:26 +0000</pubDate>
		<dc:creator>hanamipapa</dc:creator>
				<category><![CDATA[Medical Resources]]></category>
		<category><![CDATA[Hanami]]></category>
		<category><![CDATA[Infant Death]]></category>
		<category><![CDATA[infant loss]]></category>
		<category><![CDATA[maternity care]]></category>
		<category><![CDATA[Neonatal Death]]></category>
		<category><![CDATA[Stillbirth]]></category>

		<guid isPermaLink="false">http://hanamiprints.com/wordpress/2009/11/18/number-of-stillbirths-a-national-tragedy-says-charity-times-online/</guid>
		<description><![CDATA[ Pressure on understaffed neonatal and maternity units and a lack of funding   for research into stillbirth is contributing to the avoidable deaths of   almost 500 babies a year, according to researchers. In a report to be presented to the Scottish Parliament today, Sands, the   stillbirth and neonatal death charity, claims that the lives of many babies   could be saved by improved services and increased funding for research. 


Related posts:<ol><li><a href='http://hanamiprints.com/wordpress/global-alliance-to-prevent-prematurity-and-stillbirth-gapps' rel='bookmark' title='Permanent Link: Global Alliance to Prevent Prematurity and Stillbirth (GAPPS)'>Global Alliance to Prevent Prematurity and Stillbirth (GAPPS)</a></li>
<li><a href='http://hanamiprints.com/wordpress/couple-who-lost-six-babies-in-five-years-in-seventh-heaven-as-healthy-little-angel-is-born-mail-online' rel='bookmark' title='Permanent Link: Couple who lost six babies in five years in seventh heaven as healthy &#8216;little angel&#8217; is born | Mail Online'>Couple who lost six babies in five years in seventh heaven as healthy &#8216;little angel&#8217; is born | Mail Online</a></li>
<li><a href='http://hanamiprints.com/wordpress/long-term-consequences-of-the-death-of-infant-on-surviving-siblings' rel='bookmark' title='Permanent Link: Long-Term Consequences of The Death of An Infant on Surviving Siblings'>Long-Term Consequences of The Death of An Infant on Surviving Siblings</a></li>
</ol>]]></description>
			<content:encoded><![CDATA[<p>Here is a story I found today about an organization called Sands based in the UK who is calling on Scotland&#8217;s Government to ensure that stillbirths and neonatal deaths are recognized as a &#8220;major health issue and addressed as a matter of urgency and priority.&#8221;</p>
<div class="posterous_bookmarklet_entry">
<blockquote>
<div>
<p>  Pressure on understaffed neonatal and maternity units and a lack of funding   for research into stillbirth is contributing to the avoidable deaths of   almost 500 babies a year, according to researchers.  </p>
<p>  In a report to be presented to the Scottish Parliament today, Sands, the   stillbirth and neonatal death charity, claims that the lives of many babies   could be saved by improved services and increased funding for research.  </p>
<p>  The charity says that despite the figure of 325 babies stillborn in Scotland   in 2008 — one of the highest per capita in Europe — there is currently no   research into understanding stillbirth issues underway, a situation that it   described as a “national tragedy”.  </p>
<p>  The number of babies stillborn in Scotland is equal to four times the overall   deaths from MRSA, twice the number of adults who are killed in car accidents   and ten times the number of cot deaths.  </p>
<div>
<div>
<h3>Related Links</h3>
</p></div>
<div>
<div>
<ul>
<li><a href="#">  Number of stillbirths has fallen sharply  </a></li>
</ul></div>
</p></div>
<div></div>
<div></div>
</p></div>
<p>  Sands has called on the Scottish government to ensure that stillbirths and   neonatal deaths are recognised as a major health issue and addressed as a   matter of urgency and priority.  </p>
<p>  Neal Long, chief executive of Sands, said: “Almost 500 babies dying every year   in Scotland is a national tragedy. For too long these deaths have been   ignored and yet here is compelling evidence to suggest that many babies’   lives could be saved with improved delivery of maternity services and   increased funding for research.”  </p>
<p>  The report, <i>Saving Babies’ Lives</i>, reveals that Scotland has one   of the highest perinatal mortality rates in Europe — that is, babies who are   stillborn or die within the first seven days of life. Mortality is highest   in urban areas with the worst social deprivation and poorest general health   indicators.  </p>
<p>  The stillbirth rate is 1 in every 200 babies born in Scotland, a figure which   has not changed significantly since the 1980s.  </p>
<p>  Over half of all stillbirths are unexplained, the majority of unexplained   deaths occurring in low-risk pregnancies. The campaigners want midwifery and   obstetric training to focus more attention on the possibility that things   can go wrong in pregnancy and how to recognise signs of risk and minimise   those risks.  </p>
<p>  The report provides evidence that although per capita funding of maternity   services in Scotland is comparably better than for England and Wales, there   are still staffing pressures in maternity units and antenatal clinics.  </p>
<p>  “There is increasing evidence that many deaths related to events in labour are   potentially avoidable,” it states. “Quality Improvement Scotland’s recent   audit of intrapartum deaths (babies dying during labour) revealed alarming   failures of care: in 44 per cent of cases where the baby died there was   evidence of ‘major sub-optimal care’, which may have contributed to the   death.”  </p>
<p>  Of the 53,000 babies born in Scotland every year, around 8,000 — one in seven   — are admitted to neonatal units. Scotland’s premature birth rate is higher   than in England and Wales and is increasing. Yet while the pressure on units   is increasing, Scottish neonatal units continue to be understaffed and   overstretched resulting in unnecessary transfers of babies and the closure   of units to new admissions.  </p>
<p>  Babies in Scotland, the report claims, are not guaranteed one-to-one nursing   care in intensive care units and says Health Boards must commit to a   long-term recruitment and training strategy for the whole neonatal workforce   to achieve minimum standards of care for babies.  </p>
<p>  There is also failure to accurately identify and understand risk factors for   stillbirth, which include obesity, smoking, social deprivation, teenage   pregnancies and older mothers. All these factors are high and rising in   Scotland.  </p>
<p>  Gillian Smith, of the Royal College of Midwives, said: “The RCM in Scotland   welcomes this report and recognises that more work and research has to be   carried out around the loss of these babies.  </p>
<p>  “We share concerns around the reorganisation of maternity services and would   support Sands in their request to make sure that during these   reorganisations we do not lose the valuable input not just from midwives who   specialise in providing support to parents and families at this time but   also for onsite facilities which help families come together and start the   grieving process.”  </p>
<p>  <b>Case study</b>  </p>
<p>  Not once, but twice Marion Currie has experienced the devastation of losing a   baby at an advanced stage of pregnancy. Her daughter, Lesley, was stillborn   in 2002, and her son, John, in 2006.  </p>
<p>  Both pregnancies had apparently been proceeeding quite normally and she had no   reason to worry. With better knowledge, she believes, it might have been   possible to anticipate problems and her babies might have lived.  </p>
<p>  “With my son, it was believed to be placenta failure. With my daughter, the   cause was unknown, but perhaps in both instances if simple tests had been   available, and there was more knowledge, it might have been different, it’s   difficult to say,” said Ms Currie, 47, from Musselburgh, who edits a   newsletter for the charity Sands. She has two other healthy children aged 14   and 4.  </p>
<p>  “If you could just identify which pregnancies are high risk, but appear to be   low risk, then I’m sure babies’ lives could be saved. We need more research.  </p>
<p>  “There is an expression that says a new mother is born with every child. When   the child is born, the mother is born. When the child is lost, that mother   is left. I have two living children but I am very much aware that two   children are missing from my life.  </p>
<p>  “No children are interchangeable or replaceable and every child is an   individual. There are Lesley and John-shaped holes that will never be   filled. And of course life goes on, you have to care and nurture your living   children, but the holes remain. ”  </p>
</p></div>
</blockquote>
<div class="posterous_quote_citation">via <a href="http://www.timesonline.co.uk/tol/news/uk/scotland/article6920564.ece">timesonline.co.uk</a></div>
</p></div>
<p style="font-size: 10px;">  <a href="http://posterous.com">Posted via web</a>   from <a href="http://hanamiprints.posterous.com/number-of-stillbirths-a-national-tragedy-says">hanamiprints&#8217;s posterous</a>  </p>


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<li><a href='http://hanamiprints.com/wordpress/couple-who-lost-six-babies-in-five-years-in-seventh-heaven-as-healthy-little-angel-is-born-mail-online' rel='bookmark' title='Permanent Link: Couple who lost six babies in five years in seventh heaven as healthy &#8216;little angel&#8217; is born | Mail Online'>Couple who lost six babies in five years in seventh heaven as healthy &#8216;little angel&#8217; is born | Mail Online</a></li>
<li><a href='http://hanamiprints.com/wordpress/long-term-consequences-of-the-death-of-infant-on-surviving-siblings' rel='bookmark' title='Permanent Link: Long-Term Consequences of The Death of An Infant on Surviving Siblings'>Long-Term Consequences of The Death of An Infant on Surviving Siblings</a></li>
</ol></p>]]></content:encoded>
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		<title>Separately but Respectfully</title>
		<link>http://hanamiprints.com/wordpress/separately-but-respectfully</link>
		<comments>http://hanamiprints.com/wordpress/separately-but-respectfully#comments</comments>
		<pubDate>Thu, 28 May 2009 21:20:22 +0000</pubDate>
		<dc:creator>HanamiMama</dc:creator>
				<category><![CDATA[Medical Resources]]></category>
		<category><![CDATA[insensitive]]></category>
		<category><![CDATA[maternity care]]></category>
		<category><![CDATA[miscarriage]]></category>
		<category><![CDATA[perinatal death]]></category>
		<category><![CDATA[Pregnancy Loss]]></category>
		<category><![CDATA[Stillbirth]]></category>

		<guid isPermaLink="false">http://hanamiprints.com/wordpress/?p=219</guid>
		<description><![CDATA[A recent study published this week reveals that most hospitals, maternity care staff and physicians are insensitive in dealing with women experiencing pregnancy loss – probably not an unexpected finding to anyone who has lost a child through miscarriage, stillbirth or perinatal death.


Related posts:<ol><li><a href='http://hanamiprints.com/wordpress/sf-sexual-health-examiner-new-study-indicates-hospital-delivery-safer-for-babies-than-home-birth' rel='bookmark' title='Permanent Link: Hospital delivery safer for babies than home birth'>Hospital delivery safer for babies than home birth</a></li>
</ol>]]></description>
			<content:encoded><![CDATA[<p>A <a title="recent study" href=" http://www.irishhealth.com/article.html?id=15572" target="_blank">recent study</a> published this week reveals that most hospitals, maternity care staff and physicians are insensitive in dealing with women experiencing pregnancy loss – probably not an unexpected finding to anyone who has lost a child through miscarriage, stillbirth or perinatal death. The study was conducted by the Association for Improvements in the Maternity Services &#8211; Ireland (AIMSI) and focused on women having miscarriages. Those surveyed reported receiving care for their miscarriage on the labor and delivery floor, right next to women at the end of a long pregnancy about to give birth to a living child, God willing. One of the respondents reported being traumatized by hearing the sounds of a busy delivery room as she was dealt the news she would lose her tiny baby to miscarriage.</p>
<p>Although the subject of the article centers on the mishandling of miscarriages, it brings back nightmarish memories of my own labor and delivery story – the silent birth of my first child, Nicolas, one week after his due date. After waiting patiently for 41 weeks, convinced we were out of the “danger zone,” i.e., the first trimester (oh, how naïve I was then), we went to the hospital on February 28, 2006, excited that labor had finally started, only to be told our son had “no heartbeat.” Lying next to me in the same room were two other laboring women, hooked up to Dopplers, the strong swoosh, swoosh, swoosh of their babies’ heartbeats echoing along with my sobs. I was finally taken to a private room and given Pitocin as my labor slowed. I was told my contractions stopped because usually babies help progress labor, but in my case… I wanted to tell them Nicolas wasn’t being difficult – he was dead.</p>
<p>I labored for about 23 hours, thankfully much of that time lost in a fog of pain and shock. But every now and then, from another room down the hall, the sweet, mocking sound of a newborn cry and the cheers of nurses would creep into my consciousness. Every now and then I would hear that strong swoosh next door and realize my nurses didn’t even bother to put a heartbeat monitor on me. The following day, in my recovery room, a nursing assistant came in with an sunny smile on his face and told me it was time to take my prenatal vitamin. I had just given my son’s body back to the nurse for the final time and was in no mood for false cheer. As he left the room with that damn pill still in the little Dixie cup, I glimpsed just outside my door a new mom and dad with their breathing baby bundled in an infant carrier, ready to go home. I could take no more and demanded to be released. I was given a prescription for Motrin for the physical pain and two anxiety pills for the emotional trauma that lie ahead (they were concerned I would take all the pills at once, so I only got two). The pharmacist congratulated me on the birth of my baby as she handed me my prescriptions, and all I could choke out was, “thank you.” My husband pulled the car around, and I climbed in, Nicolas’ empty car seat in the back. We went home and shut the door to Nicolas’ waiting nursery.</p>
<p>I wonder now if my experience would have been better if I were quietly taken to a room far enough away from the “normal” labor and delivery floor so I wouldn’t have heard those Doppler heartbeats and newborn cries, so I wouldn’t have seen living babies next to my dead son. I wonder if it’s asking too much to be treated respectfully but separately from other laboring women, to be handled a bit more sensitively and to be spared those painful reminders of what I would never have with Nicolas.</p>


<p>Related posts:<ol><li><a href='http://hanamiprints.com/wordpress/sf-sexual-health-examiner-new-study-indicates-hospital-delivery-safer-for-babies-than-home-birth' rel='bookmark' title='Permanent Link: Hospital delivery safer for babies than home birth'>Hospital delivery safer for babies than home birth</a></li>
</ol></p>]]></content:encoded>
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